LDS患者の日常

Explore my personal journey as I chose valve-sparing aortic root replacement surgery and underwent extensive preoperative preparation. (Part I)

Read my real-life experience of undergoing synthetic graft replacement surgery for an abdominal aortic aneurysm due to Loeys-Dietz Syndrome, from pre-surgery fears to post-op recovery.

Hello, I’m Mikan. In my previous posts—The Hardships of Living with LDS , , and —I’ve shared various aspects of livi...

Discover the journey of social reintegration after LDS surgeries—covering recovery milestones, exam challenges, and returning to work amid everyday struggles.

Follow Mikan’s journey with Loeys-Dietz Syndrome as she recounts the challenges of three major surgeries—from coil embolization to abdominal aortic aneurysm repair and aortic root replacement—detailing her post-operative pain, recovery, and coping strategies.

Explore the emotional and physical challenges of being diagnosed with Loeys-Dietz Syndrome (LDS). Understand the process, the impact of the diagnosis, and the struggles faced along the way.

Discover my personal journey to a Loeys-Dietz Syndrome diagnosis—from early back surgery to aneurysm detection and genetic testing—as a Japanese woman facing a rare disease.