Hello, I’m Mikan, a woman living in Japan.
I have been diagnosed with Loeys-Dietz Syndrome, a designated intractable disease, and I have undergone several surgeries.
Until I Was Diagnosed with Loeys-Dietz Syndrome
Surgical Experiences
I have undergone various surgeries, and I’ve documented my detailed experiences along the way.
- Synthetic Graft Replacement Surgery(for abdominal aortic aneurysm and subclavian artery aneurysm)
- Valve-Sparing Aortic Root Replacement Surgery
- Coil Embolization
- Coronary Catheterization
The Hardships of Living with a Rare Disease
Ever since I learned that I have a designated intractable disease, I have faced numerous challenges. I discuss these struggles in several parts.
- Part ① – The Diagnosis
- Part ② – surgery
- Part ③ – Social Reintegration
- Part ④ – How Much Should I Share?
Scar Care
Even though surgery improves my condition, it leaves behind scars—a badge of honor. I work every day to help them fade as much as possible.
On this blog, I share my experiences since being diagnosed with Loeys-Dietz Syndrome.
You are not alone. Let’s face this journey together.
I hope this blog proves helpful in some way.