Loeys-Dietz Syndrome

Follow Mikan’s journey with Loeys-Dietz Syndrome as she recounts the challenges of three major surgeries—from coil embolization to abdominal aortic aneurysm repair and aortic root replacement—detailing her post-operative pain, recovery, and coping strategies.

Explore the emotional and physical challenges of being diagnosed with Loeys-Dietz Syndrome (LDS). Understand the process, the impact of the diagnosis, and the struggles faced along the way.

Discover my personal journey to a Loeys-Dietz Syndrome diagnosis—from early back surgery to aneurysm detection and genetic testing—as a Japanese woman facing a rare disease.